Rosi Winn is taking a break from work and taking on the challenge of cycling the length of Africa to raise money for Cystic Fibrosis (CF). Rosi has provided a brief outline of her plans.
The ride runs from Cairo to Cape Town traversing some “interesting” places – as many of the roads aren’t paved I’ll be taking my trusty mountain bike. No doubt that will be great on the rough roads but less fun in the Ethiopian mountains! It should take me 4-5 months to complete the journey, riding 100-150km a day 6 days a week. I’m both excited and apprehensive but you never know how things will go until you try!
What is Cystic Fibrosis? It’s Australia’s most common life threatening genetic disease, affecting thousands of people. The result of a faulty gene, it affects the internal organs clogging them with thick sticky mucus. It particularly affects the lungs and digestive system making it hard to breathe and digest food. This places severe limitations on sufferers; requires them to follow onerous treatment regimes and significantly shortens life expectancy. At present there is no cure for CF, but the faulty gene has been identified and scientists are working to find ways of repairing or replacing it.
Why Cystic Fibrosis? Well my brother has it and we all want to do things to help the people we care about. I’ve seen first hand how difficult it makes life, with a pretty onerous daily routine needed to maintain reasonable functioning and a drug intake that would make Lance Armstrong squirm.
It’s a disease that makes it hard to do lots of the things in life that I enjoy. Its also a disease where research over the last 10-20 years has led to rapid progress and the main barrier to further progress is sufficient research funding. For example, 50 years ago a child born with CF was lucky to live over five years; today half of those living with Cystic Fibrosis are likely to live past 41 years.
If you want to support Rosi she is hosting a fundraiser on Sunday 2nd December at Murrays in Manly from 2pm. Tickets are the BARGAIN price of $20 and there will be plenty of goodies, just RSVP to firstname.lastname@example.org or drop by on the day.
People are welcome to bring children – although I’d recommend coming in the afternoon. It’s a great venue with a good vibe and lovely views. We’ll be providing food and music; we’ve got some awesome raffle prizes and the company will, of course, be fabulous – so come along, bring your friends and share the good stuff!
To help us plan numbers it would be great if you would RSVP – but even if you don’t manage that please come along on the day if you can. Also, if you haven’t already done so (and a BIG thankyou to those who have) perhaps you would consider sponsoring me for the big ride?
I have set myself the goal of raising $1 per km over the 12,000 km of the ride. All I need is 100 people who will sponsor me 1c per km – if you are prepared to be one of them (or are able to make a different contribution) here’s the link http://www.everydayhero.com.au/rosi_winn
– all contributions are tax deductible too!
If nothing else please lend her your voice and vote here http://sunsuperdreams.com.au/dream/view/helping-find-a-cure-for-cystic-fibrosis-1 to support her bid to get a $5,000 grant for CF (it’s easy and only takes a minute).
Rosi is heading off to Africa from early January – you can follow her progress at www.cairotocapetownforcf.com.